Historic Victory for Kidney Health: WHO Adopts Landmark Global Resolution The International Society of Nephrology (ISN), supported by the European Kidney Patients’ Federation (EKPF) and other stakeholders, celebrates a milestone achievement as the World Health...
EKPF Participates in ERKNet’s European Meeting to Strengthen the Voice of Rare Kidney Disease Patients The annual meeting of ERKNet, the European Rare Kidney Disease Reference Network, was held in Leuven, Belgium. This important forum brings together healthcare...
🎥 Horizon Project “geneTIGA” Launches Educational Video on IgA Nephropathy and Innovative Gene Editing Therapy We are thrilled to announce the release of geneTIGA video, designed to engage and educate the general public, including patients and school...
New Publication Highlights the Humanistic Burden of IgA Nephropathy We are pleased to share the publication of a new study titled “The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States,” in which Daniel Gallego,...
We are deeply saddened to hear of the passing of our colleague Henning Søndergaard. Henning was a passionate advocate for the rights of kidney patients, deeply committed to improving communication between healthcare professionals and patients, drawing from his...
