aHUS Awareness Day Today is aHUS Awareness Day! We are proud to support aHUS alliance this 24th September to raise visibility about the Atypical Hemolytic Uremic Syndrome (atypical HUS).Atypical HUS is a rare form of thrombotic microangiopathy (TMA) which impairs...
FEDERG reviews and updates their strategy at its annual meeting FEDERG, Federation of European Patients’ Groups Affected by Rare/Genetic Diseases, a member of the EKPF, met in Valencia to review the organisation’s strategy to achieve its objectives. The...
Living Well With Kidney Disease and Effective Symptom Management: Consensus Conference Proceedings Chronic kidney disease (CKD) confers a high burden of uremic symptoms that may be underrecognized, underdiagnosed, and undertreated. Unpleasant symptoms, such as...
PKD Awareness Day PKD Awareness Day is dedicated to raising awareness and support for people living with polycystic kidney disease.Polycystic kidney disease (PKD) is a chronic, genetic disease causing the uncontrolled growth of cysts in the kidney, eventually leading...
Robert Teržan, member of the Slovenian Association of Kidney Patients’ Associations, has passed away. Today we have learned of the sad news of the passing away of Robert Teržan. Robert Teržan was born in Celje in 1961 and struggled with kidney disease all his...
